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Severe Food Allergy Stresses Moms, Baffles Doctors

new york vomiting lethargy emergency room entercolitis syndrome gastroenterologists

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#1 Hum

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Posted 04 June 2013 - 15:56

Tyler Trovato loves his peanut butter and jelly sandwiches with a glass of milk, but if he diverges from that and only a handful of other foods, the 6-year-old goes into a fit of vomiting and lethargy so severe that he has to go to the emergency room.

The St. James, N.Y., first-grader is allergic to just about everything else -- chicken, turkey, rice, sweet potatoes and bananas, among others. As a toddler, he was even allergic to his mother's breast milk and she was a vegetarian.

Since he was 18 months old he has to be hospitalized before he can try a new food.

If he ingests a food he is allergic to, Tyler begins to have stomach pains about two to four hours after ingestion and then vomits, sometimes so violently he bleeds. Diarrhea follows and a then a shock-like response.

"He becomes pale, lethargic, doesn't talk and usually stumbles when he walks," said his mother, Jennifer Trovato, 37. "When he reacts he needs fluids. The hospital usually gives him saline, steroids and sometimes Benadryl. He doesn't require an epi-pen but his allergic reaction can be life threatening."

Peanuts and dairy products are notorious offenders for children with food allergies, but few parents and doctors are aware of a much more insidious food allergy that many in the pediatric community have never heard of.

Tyler has food protein induced entercolitis syndrome or FPIES. The allergy does not cause a typical immune response and therefore is often missed by pediatricians and allergists.

Experts have no idea how many children suffer from FPIES and there is no diagnostic code to help doctors identify it.

In FPIES, there is an allergic reaction in the gastrointestinal system. The most common triggers are milk and soy, but any food, even rice and oats, can cause a reaction.

Unlike most food allergies, an FPIES reaction is delayed and usually begins two hours after ingestion of food culprits.

In an IgE mediated food allergy, a child develops symptoms almost immediately after eating. And when blood and skin tests are carried out, there is a positive marker.

A non-IgE mediated food allergy like FPIES is especially difficult to diagnose because standard skin and blood testing for specific IgE are routinely negative.

Tyler saw two pediatric allergists and two gastroenterologists before anyone could figure out what was making the little boy so sick because all the standard allergy tests came back negative. Finally, at 18 months, he was diagnosed.

"It was stressful for us as parents," said Trovato, a kindergarten teacher. "We knew there was something wrong. Now we are part of a study and we are glad to do it, educating others."

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#2 Anibal P

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Posted 04 June 2013 - 15:59

I won't be surprised if they trace it back to her following the vegetarian fad more than any other reason

#3 DocM

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Posted 04 June 2013 - 16:04

^ wouldn't surprise me either. Could also be a problem with his gut bacteria. Might want to try a fecal transplant.

#4 theyarecomingforyou

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Posted 04 June 2013 - 16:05

Tyler Trovato loves his peanut butter and jelly sandwiches with a glass of milk, but if he diverges from that and only a handful of other foods, the 6-year-old goes into a fit of vomiting and lethargy so severe that he has to go to the emergency room.

The St. James, N.Y., first-grader is allergic to just about everything else -- chicken, turkey, rice, sweet potatoes and bananas, among others. As a toddler, he was even allergic to his mother's breast milk and she was a vegetarian.

Since he was 18 months old he has to be hospitalized before he can try a new food.


Sounds like a brilliant evolutionary trait.

#5 Nerd Rage

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Posted 04 June 2013 - 16:11

I won't be surprised if they trace it back to her following the vegetarian fad more than any other reason


I'm just nitpicking, but I would in no way call vegetarianism a fad. It's been around a long time and growing in popularity. Hundreds of millions of people in the world are vegetarian.

#6 vcfan

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Posted 04 June 2013 - 16:20

I won't be surprised if they trace it back to her following the vegetarian fad more than any other reason


exactly.

#7 slumdogtrillionaire

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Posted 04 June 2013 - 16:21

delete

#8 Growled

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Posted 04 June 2013 - 17:50

I love peanut butter but not for every meal. Poor dude.

#9 +MikeChipshop

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Posted 04 June 2013 - 18:14

I'm just nitpicking, but I would in no way call vegetarianism a fad. It's been around a long time and growing in popularity. Hundreds of millions of people in the world are vegetarian.


Vegetarianism yes, however many people get in to it as a fad rather than as a dietary lifestyle.

#10 vetDirtyLarry

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Posted 04 June 2013 - 18:16

Yep as others have said, I would not be surprised if it was his mothers diet that somehow affected his. Way stranger things have happened.

#11 chrisj1968

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Posted 04 June 2013 - 18:25

Hmm does he drink, drinks with Aspartame? How about High Fructose corn Syrup? the swill people are eating has alot to do with our health. I buy and take the Tangy Tangerine drink with my electrolyte regiment due to severe short bowel syndrome has helped me with alot of my malnutrition issues.

http://pharmacistben.com/ and http://www.beyondtangy.com/

all of our medical issues are directly related to our nutrition. I am solely giving you all this link due to how it has helped me tremendously. I am holding steady at a modest 220lbs too.

God speed people.

-Chrisj1968