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Posted

Tripura, India (CNN) -- The pictures may be difficult to look at, but 18-month-old Roona Begum's story of survival is remarkable.

Soon after she was born in a remote village in northeastern India, Roona was diagnosed with an extreme form of hydrocephalus -- a disorder causing cerebral fluid to build up in the brain.

Doctors had given Roona just a few months to live.

"Day-by-day, her head started growing bigger, she stopped wanting to eat, she would just lie in bed, it became very difficult for us to carry her and take her anywhere," says Roona's father Abdul Rehman says.

Roona's head grew to a circumference of 94 centimeters, almost triple the size of a normal baby.

There were ten liters of excess fluid inside her brain. Her head was so heavy she could barely move.

Hydrocephalus is more common among infants and older adults. The condition is caused by overproduction, obstruction or lack of absorption of the cerebral fluid in the brain.

The skin of her head has stretched so far, it pulled her eyelids over her eyes, making it impossible for Roona to see.

Her mother, Fatima Begum, would draw eyebrows on Roona with black kohl everyday just to try and make her look more normal.

Krantz and Borchgrevink put Roona's photo on a crowd funding website, hoping to raise $1,600 to cover her shunt surgery. In two months, they raised double that amount, and by August 2013, they raised more than $60,000.

They've transferred half of this amount to the charity arm of Fortis Hospital in New Delhi for her treatment. The hospital covered the remaining half of the expenses. The students plan to send the remaining amount for Roona's aftercare.

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Posted

The first picture he looks like Stewie ( from family guy ) but tan...

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Posted

Remarkable story. Glad she is all right.

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Posted

I wonder what such a condition symbolizes ...

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Posted

He comes in the peace!

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Posted

I wonder what such a condition symbolizes ...

 

 

 

 

an extreme form of hydrocephalus -- a disorder causing cerebral fluid to build up in the brain.

 

 

Am I missing something?

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Posted

The Mekon!

 

Great work by the doctors.

 

Am I missing something?

 

I believe that Hum is alluding to the fact that physical deformity - conjoined twins, excess limbs, etc. - are often attributed divine meaning in regional communities. 

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Posted

The Mekon!

 

Great work by the doctors.

 

 

I believe that Hum is alluding to the fact that physical deformity - conjoined twins, excess limbs, etc. - are often attributed divine meaning in regional communities. 

 

 

I see. Well there are plenty of gurus in India looking to turn a buck (rupee) I am sure they can invent something.

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