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Pete Frates can no longer speak. But in the last two and a half weeks, a video posted on Facebook by Mr. Frates, a 29-year-old former college baseball player, has inspired people like Bill Gates, LeBron James, Chris Christie and Taylor Swift to dump a bucket of ice on their heads and speak out for his cause.


The ?Ice Bucket Challenge? has lit social media on fire, raising both money and awareness for amyotrophic lateral sclerosis, commonly known as Lou Gehrig?s disease. About 30,000 Americans now have the disease, which attacks nerve cells and ultimately leads to total paralysis, though the mind remains sharp. Life expectancy is typically two to five years from the time of diagnosis.


The stunt goes like this: People make a video of themselves dumping a bucket of ice water on their heads, post it on Facebook, Instagram or other social media sites, and then challenge friends to do the same within 24 hours or donate $100 to ALS. (Many do both.)


People have shared more than 1.2 million videos on Facebook between June 1 and Aug. 13 and mentioned the phenomenon more than 2.2 million times on Twitter since July 29, according to those sites. Donations to the ALS Association have spiked. As of Sunday, the association said it had received $13.3 million in donations since July 29, compared with $1.7 million during the same period last year. It said there were about 260,000 new donors. (With a spate of celebrities and business executives joining in over the past few days and pledging contributions, that number is expected to rise.)



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But I digress.


Considering some of the big names that have participated in this, $13 million is very little.



Anyway, good to see that the ALS (or MND) is becoming more well known by its real name.

How many young Americans even know who Lou Gehrig was, or the circumstances of his death?

Surely his surviving family would rather not have such a debilitating illness as his main legacy.

Diseases are often named after their discoverers, not famous sufferers.

Maybe in the UK they can start calling it Stephen Hawking's Disease?

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